Neurofibromatosis is a genetic disorder that causes tumors to form on nerve tissue. These tumors can develop anywhere in your nervous system, including your brain, spinal cord and nerves. Neurofibromatosis is usually diagnosed in childhood or early adulthood.

 

The tumors are usually noncancerous (benign), but sometimes can become cancerous (malignant). Symptoms are often mild. However, complications of neurofibromatosis can include hearing loss, learning impairment, heart and blood vessel (cardiovascular) problems, loss of vision, and severe pain.

 

Neurofibromatosis treatment aims to maximize healthy growth and development and to manage complications as soon as they arise. When neurofibromatosis causes large tumors or tumors that press on a nerve, surgery can help ease symptoms. Some people may benefit from other therapies, such as stereotactic radiosurgery or medications to control pain.

HELP END NF

A NOTE FROM

ROCKIN' TX CHARTERS:

This past weekend RockinTXCharters had the opportunity to be a part of an incredible fundraiser for the Children’s Tumor Foundation.  This event hits close to home for us as we have a personal young hero fighting this fight.  The fundraiser was incredible and raised close to the goal of $50,000 which is the amount needed for a clinical trial. 

 

So in an effort to reach the $50,000 goal, from now until November 1, we have partnered with FathersHandFoundation in giving away a four-man bow fishing trip for you and three friends. For every $5 you donate or spend on hats, bracelets, shirts or booking a charter, your name will be entered into a raffle to be drawn by our little hero Ranger. Go to FathersHandFoundation and click on the #TeamRanger tab to make your tax deductible donation.

 

Please share and let’s see if we can help put an end to NF (Neurofibromatosis).  To learn more about NF visit www.CTF.org #TeamRanger #EndNF #ChatersForACause

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